EXPERT CENTRES for Rare Neurological Diseases
You will find below the expert centres in rare neurological diseases across Europe that are part of the ERN-RND network. These RND expert centres have been approved by their respective national healthcare authorities and have been thoroughly assessed during the ERN application process.
The network is currently composed of 64 full members and 4 Affiliated Partners from 24 countries.
General information and contact details of the ERN-RND centres can be found at Orphanet, the portal for rare diseases and orphan drugs.
Full Members & Affiliated Partners
How to contact ERN-RND expert centres
You will find the contact details of our ERN-RND Expert Centres here.
Supporting partners
- Bulgaria
- Huntington’s Disease and Chorea; UMHAT Alexandrovska Hospital; Sofia; Bulgaria; Sashka Zhelyazkova: email | phone
- France
- Atypical Parkinsonism and Genetic PD; Frontotemporal Dementia; CHU de Lille; France; Thibaud Lebouvier: email | phone
- Dystonia, Paroxysmal Disorders and Neurodegeneration with Brain Ion Accumulation; Huntington’s Disease and Chorea; APHP – Hôpital Armand Trousseau – Paris; France; Claudia Ravelli: email | phone
- Dystonia, Paroxysmal Disorders and Neurodegeneration with Brain Ion Accumulation; Huntington’s Disease and Chorea; APHP – Hôpital Armand Trousseau – Paris; France; Diane Doummar: email | phone
- Germany
- Ataxia and Hereditary Spastic Paraplegia; University Hospital of Heidelberg; Germany | Department for Neurodegeneration; Rebecca Schüle: email | phone
- Ataxia and Hereditary Spastic Paraplegia; Leukodystrophy; University of Leipzig Medical Center; Germany; Wolfgang Köhler: email | phone
- Ataxia and Hereditary Spastic Paraplegia; Leukodystrophy; University of Leipzig Medical Center; Germany; Caroline Bergner: email | phone
- Atypical Parkinsonism and Genetic PD; Frontotemporal Dementia; University Medical Center Rostock; Germany; Andreas Hermann: email | phone
- Dystonia, Paroxysmal Disorders and Neurodegeneration with Brain Ion Accumulation; University Hospital of Köln; Germany; Anne Koy: email | phone
- Huntington’s Disease and Chorea; University Medical Center Rostock; Germany | Translational Neurodegeneration Section “Albrecht Kossel”; Kevin Peikert: email
Is your hospital interested to collaborate with ERN-RND? If it is located in a European country not yet represented within ERN-RND, you can apply for your hospital to become a supporting partner.
For more information, please contact Carola Reinhard.
Videos from our members
In 2021, some of our members recorded a video to introduce themselves. You can find these members named on the map below. Click on the city names to view the videos. The locations of our other members are also included on this map.
If you want to be included, send us your introductory video!
Overview of all ERNs
ERN-RND is one of 24 European Reference Networks (ERNs). We have strong collaborations with the other two Neuro-ERNs EURO-NMD and epiCARE.
If you want to find out more about the other ERNs find them all listed here with a link to their website.